Hohenstein, Vision for Equality recognize Profound Autism Day
Rep. Joseph C. Hohenstein March 24, 2026 | 4:20 PM
HARRISBURG, March 24 – Today, state Rep. Joe Hohenstein, D-Phila., joined Jen Fischer, program coordinator at Vision for Equality, and more advocates for a news conference at the state Capitol to recognize Profound Autism Day.
Profound Autism Day is a dedicated observance aimed at recognizing and supporting people with profound autism, a term used to describe individuals on the autism spectrum who require lifetime, 24/7 care due to significant communication, behavioral and sensory challenges. The observance was on March 17, but today is the day Pennsylvania observes it.
Hohenstein and Fischer were joined by Beth O’Connell from the organization Supportive Behavioral Resources, and Jim Bouder, the father of a child who has profound autism. Fischer and O’Connell both have children who have autism.
Hohenstein has spent his time as a legislator fiercely advocating for Pennsylvanians with disabilities and said that he continues that work, including for those with profound autism.
“Taking care of our most vulnerable neighbors is an essential part of service. We must meet the moment and ensure individuals with profound autism can receive the care and support they need.”
Fischer discussed the importance of supporting those with profound autism.
“People with profound Autism need to be seen, heard and supported. We need to ensure that there are resources and supports that meet their needs.”
Beth O’Connell pointed out that more must be done to fully care for individuals with profound autism.
“Profound Autism is a lifelong disability requiring substantial support for the individuals and their families/caregivers. Individuals often have complex care needs, and unfortunately, the current care system cannot fully meet those needs due to the direct support professional crisis.”
Jim Bouder discussed the importance of having systems that prioritize quality service for those with profound autism and significant disabilities.
"For people with the most significant disabilities, rigid systems don’t create safety — they create risk. A system that tells families to wait has already fallen behind. We know how to do better. The question is whether we’re willing to build services around people, not force people to fit the system."